Sometimes I wish it were all in my head, but really, if it were, would I be crippled and in bed all day? One of my diagnoses is PPPD (Persistent Postural-Perceptual Dizziness) was once previously classified as a psychological disorder. It was also called PPV (Phobic Postural Vertigo) at that time, which sounds more psychological in nature than physiological.
This disorder isn’t very well understood. It’s so new in fact, it’s not in the World Health Origination’s International Classification of Diseases (ICD-10) that is widely used around the world currently. It was only added in 2017 to the ICD-11 and that will not be put into place in the US until January 1, 2022. Even now it’s kind of a “catch-all” disorder for when the doctors really don’t know what’s going on, kind of the Fibromyalgia of the Vestibular world.
I’ll describe this disorder in two ways.
- 24/7 Constant Dizziness
- Perpetual Dizziness – My brain thinks I am dizzy, so it tries to correct itself which makes me dizzy and then gets stuck in a loop.
Sounds fun doesn’t it?
So with that fun what do I get to do about it? Well, nothing really… Okay, not nothing, but very little, so one of the symptoms is anxiety. So, a common treatment is anxiety medication such as Xanax or Zoloft. Another common treatment is VRT, or Vestibular Rehabilitation Therapy, which will help retrain your brain to help some with the dizziness. But really, that’s about it, that and time.
It’s not all gloom and doom, you can still live a great life! Just have fun and be careful. There will be bad days, but that’s a normal thing with anyone, everyone will have good days and bad days. Our days will just be a little different! That’s one of the main reasons why we started our vlog was to help show you guys that even though I may have bad days, I’m still getting out and having fun with the family.
If you want to learn a TON more about PPPD. Take a look at the VeDA page on it.
Do you have PPPD? How has your experience been with it? What more information would you like to know about this disorder that we might be able to provide?